ALS Awareness Month takes place annually during the month of May. ALS Awareness Month is an important time of year for those affected by the disease. It’s a time to commemorate and bolster those dealing with ALS while also raising understanding of the disorder. During ALS Awareness Month, we can learn more about the history of the month, discover how to celebrate it, explore creative social media post ideas that will help spread awareness online, and find out what other holidays are related to this cause. Finally, we’ll discuss ways you can get involved in supporting people who have been diagnosed with ALS while learning where to find additional resources if needed. Let’s take a closer look at all these topics during ALS Awareness Month.

als awareness month

When is ALS Awareness Month?

ALS Awareness Month takes place annually during the month of May to raise awareness and support for those living with amyotrophic lateral sclerosis (ALS). During ALS Awareness Month, organizations like the ALS Association and Paralyzed Veterans of America strive to raise awareness about ALS, also known as Lou Gehrig’s Disease, a fatal neurodegenerative disorder that affects 30,000 people in the United States.

History Of ALS Awareness Month

The first official observance of ALS Awareness Month was declared in 2009 by President Barack Obama. Each year, the event works to highlight ALS and offer aid for those impacted by it. The goal is to bring attention to both medical research initiatives and financial assistance programs available for individuals living with this debilitating illness.


How to Celebrate ALS Awareness Month

ALS Awareness Month is the perfect opportunity to come together and support those living with ALS and their families. Whether you’re a business, individual, or organization, there are plenty of ways to get involved and make a difference for those impacted by this devastating illness. Businesses can show their support for ALS Awareness Month by taking part in a host of activities. From raising funds to hosting awareness events, businesses have the opportunity to make a real difference in the lives of people living with ALS and those who care for them. Here are some ideas on how businesses can get involved this ALS Awareness Month:

  • Donate proceeds from sales to ALS research and support organizations.
  • Host an ALS awareness event at your business or collaborate with another organization to host one.
  • Share ALS facts on social media or in emails and newsletters to educate customers and followers about ALS.
  • Encourage your team to wear red, the ALS awareness color, during ALS Awareness Month.
  • Ask customers to participate in ALS walks or other fundraising activities.
  • Reach out to ALS support groups in your community to see how you can help out.
  • Hang ALS awareness ribbons outside your business to show support for ALS patients and their families.
  • Offer free ALS screenings and health checkups to customers during ALS Awareness Month in order to provide them with the education and resources they need.
  • Sponsor an ALS advocacy group or organization by donating a portion of your sales or profits toward their cause.
  • Organize an ALS fundraiser for employees, customers, or the community.

Individuals can show their support for ALS by participating in a variety of activities that will help spread awareness online and within their own communities. Whether you’re looking for creative ideas to celebrate ALS or just want to spread the word, here are some of the best ways you can help out this ALS Awareness Month.

  • Donate to an ALS charity or organization such as ALS Association, ALS TDI, and ALS Hope Foundation.
  • Take part in a virtual fundraiser like the ALS Ice Bucket Challenge.
  • Attend an ALS support group meeting near you.
  • Educate yourself on ALS and share what you’ve learned with friends and family.
  • Buy merchandise from ALS charities to show your support.
  • Send a card or letter of encouragement to someone living with ALS.
  • Wear red, the ALS awareness color.
  • Share ALS-related posts on social media to help spread awareness.
  • Volunteer your time with ALS organizations to lend a helping hand.

Whether you’re a business looking for creative ways to get involved or an individual striving to spread awareness for this debilitating illness, there are plenty of opportunities to make a real difference in the lives of those living with ALS.

Social Media Post Ideas For ALS Awareness Month

ALS Awareness Month is the perfect opportunity to unite in support of those living with ALS and their families. By using social media, individuals, businesses, and organizations can reach out to others and help spread awareness about ALS. Here are some ideas for posts you can share on social media during ALS Awareness month:

  • Share inspiring stories or quotes from ALS patients and their families.
  • Invite others to join you in donating to ALS charities or organizations.
  • Post a picture of yourself wearing red, the ALS awareness color, with a caption encouraging others to do the same.
  • Encourage people to participate in ALS walks or other ALS fundraisers in their area.
  • Share ALS success stories to inspire others and spread hope.
  • Send a virtual hug or message of support to those living with ALS.
  • Spread the word about ALS services and resources available locally.
  • Educate yourself on ALS and share what you’ve learned with your followers.
  • Remind your followers of the importance of ALS Awareness Month and how we can all make a difference in the lives of those living with ALS.
  • Highlight statistics regarding funding needs for ALS research.

ALS Awareness Month is the perfect time to honor those living with ALS and their families by spreading awareness and showing support and social media can be a powerful way to spread the word and rally support.

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Hashtags For ALS Awareness Month

Take your ALS awareness efforts to the next level by using these ALS-related hashtags when posting about ALS Awareness Month on social media. Some ALS-related hashtags that you can use during ALS Awareness Month include:

  • #ALSAwarenessMonth
  • #ALSAwareness
  • #ALSCommunity
  • #EndALS
  • #LouGehrigsDisease
  • #StrikeOutALS
  • #ALSIceBucketChallenge
  • #ALScommunity

By using ALS-related hashtags, you can join the ALS community in spreading awareness and finding strength through shared experiences. Your posts will reach a wider audience, allowing more people to understand ALS and get involved in supporting those living with it.

Finally, don’t forget to add location-based tags whenever possible so people near you can join in on spreading awareness too. For example, if there’s an event happening near you related to raising funds for research into finding a cure for ALS, add the city name along with other relevant hashtags so others nearby can easily find out what’s going on and join in supporting the cause too.

For the complete list of holidays to celebrate on social media in May, visit

Other Holidays Related To ALS Awareness Month

May is ALS Awareness Month, but there are other holidays throughout the year that support ALS awareness and fundraising. Here are some ALS-related holidays you can celebrate on social media:

Global ALS Awareness Day is celebrated each year on June 21st to raise awareness of ALS. ALS Awareness Day is a day to raise awareness of ALS while also honoring the courage of those living with the disease and their families. On this day, we want to demonstrate our support and solidarity with ALS patients and their families. We also want to encourage people to support ALS research so that ALS can be better understood, treated, and hopefully, one day cured.

National Caregivers Day, celebrated on the third Friday in February, is an important day to recognize and honor the family members, friends, and caregivers who provide assistance to those living with ALS. It’s a time to show appreciation for their dedication and hard work in helping those afflicted with this debilitating disease.

World Rare Disease Day is celebrated annually on February 28th. It’s another holiday dedicated to raising awareness about ALS and other rare diseases. This day provides a platform for those with rare diseases, their families, healthcare professionals, activists, and policymakers to join forces in the fight for improved care.

By celebrating these other holidays related to ALS Awareness Month, we can show our support for those living with this condition and their families.

For more holidays, download our free calendar with over 1,000 fun and unique holidays to celebrate this year. Head to to grab your free copy!

ALS Awareness Month Dates

2024May 1stWednesday
2025May 1stThursday
2026May 1stFriday
2027May 1stSaturday
2028May 1stMonday
2029May 1stTuesday

What is ALS?

ALS, also known as amyotrophic lateral sclerosis or Lou Gehrig’s disease, is a progressive neurodegenerative disorder that affects the nerve cells in the brain and spinal cord. ALS causes muscle weakness and eventually leads to paralysis throughout the body. ALS is typically diagnosed in people between the ages of 40-70 years old but can occur at any age. ALS is a fatal disease with no known cure, and the average life expectancy of someone living with ALS is 2-5 years after diagnosis.

According to the ALS Association, an estimated 20,000 people in the United States are living with ALS, and between 5,000-6,000 people are diagnosed each year. ALS can affect anyone regardless of gender, race, or socio-economic background. Globally, approximately 450,000 people have ALS at any given time – but that number is increasing. ALS is a difficult disease to diagnose, and many cases go undiagnosed or misdiagnosed, so the actual number of ALS patients may be higher than reported.

What Are The Symptoms Of ALS?

ALS is a progressive disease, so symptoms vary from patient to patient and change over time. Common ALS symptoms include muscle weakness or stiffness, twitching, difficulty speaking or swallowing, slurred speech, loss of balance or coordination, and fatigue. ALS can also cause trouble with breathing as the muscles controlling respiration become weak. ALS eventually affects the ability to move, leading to paralysis. ALS is a fatal disease and is ultimately terminal.

How To Get Tested For ALS

ALS is typically diagnosed through a combination of medical history, physical exam, laboratory tests, electromyography (EMG), and magnetic resonance imaging (MRI). A diagnosis of ALS is usually made by a neurologist based on the results of these tests. If you believe that you or someone else may be showing signs or symptoms of ALS, please contact your doctor as soon as possible.

ALS Treatment Options

Unfortunately, ALS is currently incurable, but there are treatments available to help manage the symptoms and slow the progression of the disease. Common ALS treatment options include medications such as riluzole, which can help reduce symptoms of ALS and improve quality of life; physical therapy to maintain strength, mobility, and coordination; occupational therapy to learn new activities or modify existing ones; and speech and swallowing therapy to help with communication and eating. ALS patients may also benefit from psychological support to assist with coping with the diagnosis. Additionally, there are several clinical trials available for ALS patients who are looking for new treatments or potential cures.


Resources For Learning More About ALS

When exploring the topic of ALS, a wealth of online resources can be found. The Amyotrophic Lateral Sclerosis Association (ALSA) is one of the largest organizations dedicated to supporting those affected by this condition and offers information on local events and volunteer opportunities. Additionally, websites such as ALS News Today offer regular updates on current research initiatives aimed at finding cures/treatments for ALS. These sites also provide news stories highlighting new breakthroughs made possible thanks largely due generous donations received from public campaigns/events held throughout each year’s designated “awareness” month(s).


ALS is a debilitating and fatal disease that affects thousands of people around the world. ALS Awareness Month gives us an opportunity to show our support for ALS patients and their families, while raising awareness about this condition. Through celebrating ALS-related holidays, supporting local ALS organizations, and staying informed on current research initiatives, we can make an impact in the fight against ALS. Everyone has a role to play in ALS Awareness, and together we can take steps towards finding treatments and cures for this devastating disease.

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